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Showing posts with label Writing. Show all posts
Showing posts with label Writing. Show all posts

Saturday, September 24, 2011

The Witch of Endo, Pt. 3: The Companionship of Pain

(Ok—look, I’m fine. I had a rough couple of nights and needed to get this out. It’s fairly melodramatic. But I am not alone. Please don’t worry about me.)

Sometimes the pain gets to the point that you cannot sleep. It wants your company and just will not let you be. It’s as if your whole body is on red alert: unresponsive to drugs, deep breathing, visualization exercises or any combination thereof. You toss and turn, or (if it’s really bad), grimly lay as still as possible. You get up, read for a bit (1am) drink soothing teas (2am), go back to bed (3am), check your Facebook (4am), cave in and take more drugs (7am). Go back to bed (9am). Try some more deep breathing. No dice. Your body is convinced there is some sort of immanent crisis and you cannot talk it out of its stubborn and pointless readiness to act. 

Nothing is going to happen. Ever. The pain is just going to go on and on. This is the crisis. At 11am you give up. You get up.

You feel terrible. You feel weak: no one ever died from Endometriosis. People are starving in The Horn of Africa, being shot and killed in the Mid-East. People have Cancer, MS, AIDS. Your pain is inane. It means nothing. It fills the world.

There are all kinds (not just one kind!) of pain. They are distinct characters, and you know them well: their shape and tone. their foibles and preferences. You’ve spent a lot of time with them. They are reliable company.

1. The Drum: This is pain that can creep up on you. It starts out quiet, distant. Sometimes it stays that way, and you only notice it when the wind is right. Sometimes it get closer. It’s still background music but it has a beat and you dance to it. Your body knows the rhythm and you tread carefully. Then you realize you are standing in front of the big speakers and the music is so loud it actually occupies space and shoves you around. People’s lips move but you hear nothing.

2. The Lava: This is pain that oozes tendrils of heat through your pelvis. Sometimes you can feel the point of eruption. It craws and burns and spreads. It is slow but relentless. Everything in its path catches fire.

3. The Seams: These are the places that the pain is dug in. It can feel like seams of a rare mineral running through bedrock, foreign veins burrowing into bones and organs. It is hooked into everything and you imagine if you could ever grasp it and pull it out, your whole bloody dripping pelvis would be dragged along with it. You think it might not be so bad to be rid of the damn thing.

4. The Lighting Storm: This is electric, and comes out of the clear blue nothing. You are going about your day when BOOM! Shots and shards of sensation vibrate through your abdomen. You are wide-eyed, stunned, shivering.

5. The Weasels: You seem to be inhabited by tiny, sharp-toothed rodents with ill intentions. They scarper and claw, around and around and around. They trigger a similar hamster wheel in your brain: around and around and around you go. You get going so fast it’s as if your mind develops a centrifugal force: your pain is the only still point, and everything else is flung out, away from you. Nothing gets through.

6. The Orgasm. I think this is what they call “breakthrough pain.” Other symptoms lead up to it, and at some point you realize that everything else has been foreplay and you are choicelessly headed for something bigger and there is no turning back. It is as encompassing and immediate as a climax. You clutch a pillow and scream. Afterwards, you are left trembling and vulnerable, clinging to whatever flotsam of self you are able to salvage. If you are lucky, the pain rolls off you and leaves you alone for a bit. If you’re not, it’s an all-nighter and that bastard is tireless. You hate every second that he rips into you but there’s no stopping it. You’re his, and you are helpless.

Like sex, you don’t really want the general public to witness this. Any of this. Sure, people know you have it, but that’s no reason to share the reality of the event. It’s too raw, to private. Too revealing. So you take a shower, get dressed, and fake your way through another day. You find a smile that fits. You tell yourself that this does not have to be a bad day. When people (who are not as stupid as you’d like them to be), inevitably ask how you’re feeling, you conjure up something vague, like, “I’m a little worn out.”  You say this as much to fool yourself as to reassure others.

You tell yourself that the work will at least distract you. It doesn’t. You are pissed off—at the pain, your own weakness, everything. Rage keeps you moving when nothing else does; you grit your teeth and think something along the lines of “You might have fucked me all night, but you are not going to fuck up my day.”  You tell yourself this is not the best habit to get into.

When you write about it, you can’t even bring yourself to be you.  You write for the second person, for someone else who is you. You do this because it makes it easier to admit to, but also because the bastard has half convinced you that you are utterly isolated and even when you are writing alone at 11am after two nights of no sleep and giving the pain faintly ridiculous characteristics to somehow break it down into a manageable reality, you mostly write for the second person because you want to believe there is one. You would wish this on no-one. But you don’t want to believe that you are the only one. You don’t want to be alone, with only the pain for company.

Saturday, June 18, 2011

There Will Be A Slight Delay

I was washing my hair yesterday when suddenly, I thought of my NSOMNIASAUM blog. I couldn’t remember the last time this had happened (not the hair washing, silly!). So I looked at my blog, and…Holy Shit! I haven’t posted anything since April 1. Is this a joke? What happened? Where have I been? Why haven’t I been writing?

Well, to be fair, I have been writing loads of other stuff. I wrote articles for Points of Light Institute, State of Formation and Huffington Post. I wrote a long, boring document for the IRS explaining why Headwaters/Delta Interfaith ought to have tax-exempt status. I wrote 140 character tweets for various purposes and organizations. Mostly, I wrote to-do lists and then did the stuff on them, crossed the stuff off, and added more stuff. Lather, rinse, repeat.

But, still…April?

The other thing going on is that I feel like shit. I had surgery in January but by mid-April, my Endometriosis was acting up again. I don’t like writing about it. But I also don’t like NOT writing about it—you know, writing around it, pretending it’s not happening when it is happening. Plus, being in pain limits my energy so by the time my “real” work (whatever that means) is done, I’m pretty much done. Spending more time in front of the computer just to keep everyone up to date on how miserable I am…hmmm…that’s strangely unappealing. Go figure.

Also, as y’all know, I get pissed off, so I took an Anger Management class, and was SO excited to write about it…then (at the facilitator’s request), I sort of promised not to. It felt awkward to write about my life when I wasn’t able to discuss all the interesting internal crap that Anger Management stirred up, confronted, and redefined. But the class was a useful experience, and I met some marvelous, inspiring ladies. And OMG! Something profound happened, I didn’t blog about it, but…it was like it still actually happened! Who knew?

On top of all those lesser excuses, I’ve been incredibly busy being in love. Urban & I have been together for 17 years or something; now and then we’re ambushed by infatuation and can hardly tear ourselves away from each other. We stay up too late, have long deep conversations, make kissy faces, ignore our friends and exist in a goofy, magical bubble of our own. We stagger around feeling dazed, neglecting everything but each other. It’s awesome. And, right now, unexpected.  

When I’m in pain for a long time, it wears us both down. I’m shaky and exhausted for obvious reasons but it’s also a strain on him. Here are some things I can’t do when I’m in pain and/or doped up from being in pain: the dishes, feed/turn out/bring in the horses, cook dinner, drive myself anywhere, run errands, mow the lawn, weed the garden, vacuum, change the sheets, do laundry…and so on. When I’m not well, Urban picks up where I leave off, often after he’s worked a 10 hour day and not gotten enough sleep because I’m worse at night and he hates leaving me alone when I’m suffering.

Normally, by this point in my pain cycle, we are strained, crabby, and making an appointment to see our marriage counselor. But none of that is happening. Instead, Urban is being incredibly sweet and unbelievably strong: taking care of me, taking care of our animals and 10 acre property, keeping track of everything, and doing it all with grace and verve. He humbles me.

So despite the pain and the angst that inevitably accompanies it, we’re ridiculously happy. I’m sure some of that is because we are already missing each other: we’re going to be apart for 8 weeks while I’m visiting family & attending Summer Session out East. 

I’m both dreading and looking forward to the semester. I’ll admit that I’m worried about my ability to keep up with work and writing commitments and school while my body is screaming at me (SHUT UP AND SIT DOWN, SAUM! TAKE A NAP! STOP MOVING AROUND YOU BITCH, THAT HURTS!). But I love the luxury of being in a classroom rather than taking classes online, the challenge of Summer Session (16 week courses crammed into 7 weeks), and, face it, the libraries at Harvard are heavenly. Nerdvana! Besides the academic stuff, being in Cambridge is lots of fun, and I’m excited to (re)connect with some wonderful people I know in Boston, as well as make new friends. I resolve to socialize more and not to push myself so hard at school. I’ll let you know how that goes.

What I’m not resolving to do is blog here at NSOMNIASAUM. If I blog, I blog. If I don’t, I don’t. If you miss me, you can keep up with my rambling at State of Formation and Huff Post Religion. I’ll see you on Facebook and Twitter. You can call, too; anytime! You know me…I’ll probably be up.